Friday, November 13, 2009

Blood is Thicker Than Water

The saga continues. I went to the Infusion Center yesterday to have my vein tapped again. I have been behaving myself, so I have been hoping for a significant drop in my ferritin. In two weeks I will have my answer. If it turns out that all of my skimping and starving has been to no avail, that my ferritin count has basically remained the same as two months ago, I will jump from the Vegan life raft and rejoin the passengers and crew of the S.S. Omnivore. Chester, my specialist for the day, was not optimistic. She checked my hemoglobin: “Hmmm! This isn’t good! Your hemoglobin is at 17 (times three is 41) and you are not anemic at all. The doctor wants you to be anemic.” What! I did not know that! “Doc Holliday” never said anything about my becoming anemic! He just didn’t want me to ironic!

How does a fellow like me ever become anemic? Is it even possible for someone with hemochromatosis to become anemic? My body sucks up every third nano-gram of iron that I stuff into my pie-hole. I suppose that if I went on a starvation diet (much like the one I am on now), I might deplete my iron supply, but with a 136 ferritin count, I cannot even dream of becoming anemic. Now if my ferritin count were below 50, I might consider Chester’s observation about my hemoglobin as having some merit. For the time being, however, I am just going to assume that she has suffered a brain aneurism.

I was my usual bon vivant self, ebullient and radiating whining confidence as I walked into the parlor. “Ooooo! Zaphod! You’re back! How nice for us! Why don’t you settle down in Booth 1?”

“Because there is someone else already there?”

“Hmmmm. So there is. How about Booth 4? Is there anyone in there?”

There wasn’t, so I sat down, wondering who was going to end up in my lap. I was directly across from a lady who was receiving some sort of infusion. It did not look like blood. After sitting quietly for a minute or two, one of the other nurses flitted by and commented on the fact that the lady in Booth 1 had not been attended to for some time. She wondered out loud where “Gory” and his playmates were. I am not certain that that question was ever answered, even though I saw him an hour later as I was leaving. I wondered if I was going to be left unattended while they took my pint, allowing the bag to blow up like some sort of post-apocalyptic tick. Hmmmm! Anemia was possible under certain circumstances!

After about ten minutes, Chester showed up with her little bag of tricks and began working me over. “You know,” I said, “when I was in here 6 months ago, the nurse that administered the phlebotomy said that the needle wasn’t supposed to hurt, and that the only sting that I should experience was the Lytacane. Yet the last two times that I have had blood drawn, the whole process was painful. I felt the needles in spite of the Lytacane.”

“Well,” she replied, “it is nice that you are so susceptible to suggestion. These things always hurt; there is no escaping the pain; the holes in your arm are real. Look at the size of this needle! Does that look painless to you?” Chester has a wonderful chair-side manner. “Of course, it is possible to increase the amount of Lytacane a little so that it actually has some anesthetic effect. Would you like that? How about if I take your blood from the same arm where I put the Lytacane? Would that be an improvement, in your double-doctorate opinion?” I said that I thought that both options might be worth a try.

Chester always compliments me on my veins. Everyone compliments me on my veins. I have lovely veins. When my children were very young, they would entertain themselves by playing with the veins in the back of my hand. I found that somehow soothing; I generally fell asleep about half way through Church. My children found that amusing, particularly when I began to snore. Today, Chester had a bit of a conundrum to deal with. “Which of all these lovely veins to you want me to tap? They are all so lovely!” I suggested that my contemplating the matter did not tend to sooth me. “Well, then, I will just poke you HERE!” When I came to a few minutes later, Chester was fussing with the needle and the tubing. “Your blood seems a little thick today, Dr. Beeblebrox. Have you been overdosing on corn starch?” I had not. In fact, I had not partaken of breakfast or lunch that day. “Well,” she said, “Perhaps it would be better in the future to drink a lot of fluids before you come to give blood. This is like trying to siphon a quart of molasses from a fifty-gallon drum in the dead of winter.”

She horsed around with the needle for a while. “OH! That’s got it! No! Yes! No! No! No! Yes! Yes! WOW!” By the end of the hour, she had managed to coax out 480 milliliters, a pint, or some other indefinable amount of blood. She stopped at that point because, said she, I had “clotted out”, whatever that meant. I wondered if I was going to have an aneurism too.

I left the building and drove up to Shy’s house where Trillium was watching Lily’s siblings. I ate peanut butter cookies with my grandson, wondering if the cookies were going to thicken my blood any more than it already was. As we waited for Lily’s daddy to show up after his visit with the Mamma Dandelion, I drifted off, perhaps in anticipation that Lily would one day find the veins in my hand fascinating and amusing.

Friday, October 16, 2009

HU NU?

Well, my faithful readers are stuck with another “nothing” posting about hemochromatosis because I have a compulsion to write and nothing to write about. My next phlebotomy will not take place until the middle of November and the ferritin check will not be made until about the first of December.

I do, however, take the opportunity to report some necessary corrections to my previous posting. My ferritin count did not go down a point; it went UP a point from 135 to 136. Bad math skills on my part. The fact that no one picked up on the gaff is a telling one. HU NU? Apparently no one.

I have to say as well that I have cut back on my red meat. For the past week or so I have had not even one wheat dog. We went to Sizzler on Tuesday and I did not have a steak! What’s down with that! I had the senior Malibu chicken, which was made of an extremely old sand dollar, a piece of ham and a tasteless mass of cheese. I was assured that there was very little iron in the meal and so when the waitress said “Enjoy!” I tried to respond in a positive way. It was about as positive as my last change in ferritin. All I have to say is that if I want chicken any time soon, I think I will drive down to Spanish Fork and kill my own, run over it with the car, carve the individual servings out with a snickerdoodle cutter, and cook the whole mess on my radiator on the way home. I think that is the Sizzler recipe.

Now that I can do nothing about my blood count, other than abstinence, I have begun to focus on my supplements. I have wondered for the last year or so why they have not been working as well as they should have, if I am to believe the propaganda the holistic medicine people. In the midst of all this consternation, I forgot to take my pills in the morning a couple of weeks ago, not getting to them until after lunch. A wonderful thing happened. I slept six straight hours and didn’t wet the bed. For the record, I have not wet the bed for more than sixty-three years, but I was stunned that I did not have to get up every two hours to maintain my record. I thought that maybe the reason why I was able to go so long without going, was that I had taken the saw palmetto later in the day. I began to wonder about my other pills. When is it better to take them all, in the morning or in the evening? What follows are the results of my investigation.

Lisinopril: I couldn’t even remember how to spell “lisinopril” and was somewhat shocked when I googled “liprinasil” this morning and obtained no hits whatsoever. “Oh, no!” I said to myself, “I am taking a medication that is not made on this planet, completely unknown in cyberspace!” By now, you have figured out that I googled the wrong word, but Google wasn’t even smart enough to figure out what I really wanted. HU NU? Not them!

Well, I finally got the right name and found out an interesting thing. "Wikianswers" suggests that “usually, lisinopril is taken in the morning if your blood pressure is highest in the afternoon or in the evening if your blood pressure is highest in the morning". I frankly did not want to take my blood pressure twice a day to find out what I needed to do, so I completely ignored that piece of information. Eventually I found a posting by “SueAnn56” who confided to her readers, “My cardio explained that he wanted my blood pressure to be low at night and upon awakening so that my body could rest.” Hence, she takes her blood pressure medicine at night. I figured if “SueAnn56” could have that clear of a convenient reason for an afternoon tipple, “Zaphod67” could as well. I suspect that some of my good night’s rest for the past two weeks has been directly related to the fact that I have been taking my lisinapril near dinner time.

Saw palmetto: My research on saw palmetto was perfunctory because I was certain that the benefits of taking the supplement in the evening had already been proven somewhat. But I did come up with some interesting facts about saw palmetto and Flomax. The two work completely different from one another, the former apparently being far more effective in helping with some of the conditions that tend toward prostate cancer. “Spreademocracy” had this little tidbit.

Regarding Saw Palmetto, as a precaution, it might be wise to know what your DHT blood count is. Then, based on that knowledge, to discuss taking this herbal with your GP or Uro. What works for others may not work for you in the long run. For example, if you have high DHT, you may not be able to impact it sufficiently with Saw Palmetto and will lose valuable time that could have been spent containing the problem and keeping your prostate from growing. Or, you may need to swallow so many Saw Palmetto pills that you may want to jump right to PROSCAR or AVODART. (P.S., if taking large quantities of Saw Palmetto, you may want to do so with meals since it may be a tad easier on the stomach. If you have liver, kidney problems, or are going for any surgical procedures, seek medical advice before self dosing.) Best wishes to you!

Thanks, SD, I only take one pill, at night, and I seemed to be doing okay. Best wishes to you, too, but you could have been a little more specific about what you really wished for me.

Chondroitin and Glucosamine: Trillium has been telling me for some time that these two “doodahs” probably aren’t doing a whole lot for me. I had just bought a fifty-pound sack of the pills at the time she clarified her views and I thought that maybe I ought to use them up before I abandoned all hope for a completely regenerated knee joint. By the way, I have no trouble at all with my joints which is probably due to one of two things: one, I take a daily dose of chondroiton and glucosamine; or two, I have no problems at all with my joints. I did discover, however, that there is nothing in this world better than chondroiton and glucosamine if you are a dog with arthritis. I am not holding my breath, dog or otherwise, to find out the truth of this matter.

Vitamin D3: Apparently, taking this wunder-vit is good any time of the day. If you are, however, suffering from chronic renal failure, the medicos suggest that taking Vitamin D in the evening is better than in the morning. I neither desire nor need renal failure added to my list of maladies to justify my evening dose. It simply goes down with the rest of what I am taking because all of the pills are already separated into the daily slots of my weekly meds tube.

Fish Oil: My last oral bombshell is my Omega 3 Fish Oil gelcap. I found a lot of chatter on the internet about options, but here is my favorite.

With the recent addition of evening primrose oil, my morning pills now include:

1 prenatal vitamin
1 fish oil capsule (for Omega 3)
2 red raspberry leaf capsules (I also take 2 with lunch and 2 with dinner)
2 evening primrose oil capsules

Holy wow. And then my burps taste nasty for hours. Anyone else in the same boat? Anyone just decide it's not worth it? I admit I'm a bit of a vitamin freak... Leoba

HOLY WOW, LEOBA! TAKE IT AT NIGHT! Of course, my informant is eight months pregnant and may not respond well to masculine reasoning. I think that I might try the evening primrose oil and the raspberry leaf capsules just to see if I can produce sympathetic labor pains in the middle of the night.

There you have it. The latest from an old man who is frittering away his Friday morning hours blathering about stuff that will help no one feel at ease with iron-overloading, except for those of us who have suddenly realized that Leoba is about to give birth to a nine-pound salmon. With a smile on my face, I am about to head up to the kitchen to find prenatal vitamins; we’re getting close to the Christmas holidays and I want to be ready.

Sunday, October 4, 2009

What's Down With That?

I am here to report that I have managed to live my life such that during the past two months, notwithstanding the phlebotomy two weeks ago, my ferritin count only dropped 1 point, to 136. What's up with that?

I thought at first that perhaps the problem was that I had both the phlebotomy and the ferritin sample taken from the same arm. Think about it. If my body senses a steep decline in iron at my left elbow, what do you think it is going to do? Is it not going to send a big batch of ferritin to that side of my body? I should have had "She Who Shall Remain Nameless" take the ferritin sample from my right elbow where there would have been considerably less iron.

Once the lunacy of that conclusion revealed itself, I thought about other possibilities. I have concluded that I have gotten just a little too laid back, putting all of my iron eggs into one basket, as it were. I apparently decided that I really didn't need to watch what I ate during the past two months, inasmuch as as the blood-letting has been doing the trick during the past year. Let me give you a few examples.

About a month ago, Trillium brought home a 2 and one-half pound bag of Hershey's Treasures. Except for an occasional Grinchy doling out of a few pieces to one of my grand-daughters and two of my chocoholic daughters, I hammered down the whole bag by myself. Did you know that Hershey's chocolate is 247% pure iron? Well, not that much but it does contain 2% of one's daily requirement of iron, the sugar facilitating the complete absorption of every molecule, not just the 30% we hemochromatosis types allow into the sluice. My guess is that the sugar goes straight to the duodenum and opens up the floodgate for every atom that has an "Fe" engraved on it, no matter what its source.

Since we have been enjoying great grilling weather here in Utah, Trillium thought that it would be nice if we had some dinners a-la-Zaphod. We could have had halibut, or mahi-mahi. We might have gone for tofu burgers. Even baked Alaska is possible on my new grill. Did I go for any of these sensible alternatives to semi-liquid iron sources at Costco? No! I bought rib-eye steaks; two-inch thick rib-eye steaks. I also mixed in at least two or three meals of tri-tip steak. On top of that there were the frequent hamburger barbecues. I was managing to drive iron spikes into every organ of my body and thoroughly enjoying myself in the process.

At some point, in the middle of all of this indulgence, Trillium and I went out to eat at Outback. I ordered a Victoria steak, medium, and received a juicy 8-ounce piece of beef just this side of "Moo!" The boys and girls there were sorry that I had dined on living flesh, so they brought us dessert for free, which again guaranteed that every bite of that steak was destined to reach my pancreas. What's a poor boy to do?

The drop of one point of ferritin disappointed me. I am certain that my sister is going to respond to this latest development with sternness, the kind of sternness that only a linebacker for the Green Bay Packers can deliver properly. Going out with Trillium has been limited to french fries at Carl's Jr., soup and salad at the Olive Garden, and in the back yard at the apple tree. Hopefully the first of December will bring a more satisfactory result. Tonight we had a dinner that revolved around an iron-depleting plate of chicken enchiladas. I have to be better by Christmas or I will be eating coal.

Wednesday, September 23, 2009

The Iron Cross

I am not much for awards for personal heroics, but I had an experience last night that demands, in my mind at least, that there should be something done of an outward nature to reward the people in question.

A few months ago, I was ironically asked by the leaders of our Church to be in charge of the semi-annual blood drive wherein our 3500 members are given an opportunity to donate to the American Red Cross. There was a great deal of humor generated when the officers of the Church discovered the nature of my genetic condition. A few wanted to know if it was contagious and, if so, would I infect them. They apparently have some sort of fear of needles as well.

In any event, I have spent the last couple of months coordinating the arrangements between the ARC and the Church so that the building would be ready for them to set up their equipment and to have sufficient donors there to make their visit worthwhile. In times past during the last five years, about 25 to 30 units of blood have been donated at each session. Anita, my contact, was certain that we could do better, but nothing up to this point had proven effective. I said that I would do what I could. She, by the way, also found it outrageously humorous that I was to be the person in charge.

Without going into all of the particulars, I will simply say that by the time the drive started at 3:00 yesterday afternoon, we had 118 people pre-registered to donate blood. By the time of the end of the drive, at 8:00 PM, the Red Cross had been able to collect 78 units of blood. They had skeptically only brought 80 pieces of equipment to the affair, thinking that our estimates were just a little high. They were surprised and pleased. I hope that they don’t expect greater things in the spring. I did, however, learn some things from the experience.

First, it is not a good thing to have a cold, the flu, typhoid fever, mad cow disease, or malaria just prior to coming to give blood. The ARC considers that state of affairs a sanguinary sarcasm of the first order and treats the afflicted one with a certain degree of contempt. Of course, each individual had been given a 20-page booklet to read when they first registered, in which the mad cow disease was specifically mentioned. Some of the workers were certain that not everyone was taking the required time with the booklet. I frankly thought that they were just extremely fast readers like Evelyn Wood. I wonder if she gave blood fast.

Additionally it is important to know that if you have spent any length of time in a foreign country like Zimbabwe, Cambodia, Outer Mongolia, or New Mexico, you won’t be allowed to give blood. New Mexico is included on the list because most people working for the American Red Cross do not realize that the place is really a State in the United States. This fact is complicated by the fact that President Ulysses S. Grant said, while travelling through New Mexico, “I understand that we fought a war with Mexico for this desolate piece of property. I think that we ought to fight another war to force them to take it back!” One fellow served as a missionary in England several years ago during the mad cow scare and he has never been allow to donate blood since. He came last night to see if the prohibition was still in effect. It was and the ARC ushered him out of the building by enticing him with a bale of hay.

Some of the potential donors had blood vessels that were too small. When I go to the Infusion Center, the ghouls there use a 14-gauge needle on me. There is a virtual torrent of blood that pours though that stainless steel needle. I asked one of the nurses last night what size they were using. She said that they regularly employ a 16-gauge needle. Any larger than that and the blood vessels don’t cooperate, she said. I began to wonder why the Infusion Center chose to deal with me as they have. Maybe at 6’4 and 230 pounds I can be drained with less finesse.

I was startled at some of the developments during the night, events which were treated with such a baize attitude that I concluded that these were regular happenings at these organized blood-lettings. I was sitting at the registration table, minding my own business, when I heard a “thump”. I turned to see what was going on and there was a young mother who had just given blood, on her hands and knees. She had blacked out on her way to the refreshment area. She was propped up on the floor, with a little pillow and a bottle of water until she could recover sufficiently. Not five feet away was an empty gurney on to which I thought she should have been placed, but the attendants simply made her comfortable where she was. Her baby boy and her friend that she had come with sat on the floor next to her. They were there about 25 minutes. I propose that this girl be given the “Iron Cross” for her pains. This award for valor was first given by the Prussians in 1813 in conjunction with the Napoleonic Wars. I think that since she had to suffer there on the floor rather than on the gurney that her medal be upgraded to the “Grand Cross of the Iron Cross” for her troubles. A lovely and appropriate tribute.



As I was wandering about during the drive, I met another donor who, for some unexplained reason was splattered all over his right side with what I am certain was his own blood. When I asked about it, someone said, “Oh, that happens all the time!”

I thought to myself, “You know, I have been giving blood for over a year, both by the pint and by the ounce, and I have yet to be drenched in my own blood, even though I have joked about the possibility.” The fellow was cheerful about the resultant spray, almost as if he had been shot down over Belgium somewhere. Well, I think that someone ought to strap the “Knight’s Cross of the Iron Cross With Blood Squirts” around that fellow’s neck. He deserves the recognition.



The last episode concerns a rather large man, young and full of life, who came into the building about 6:30. He was almost the last person to leave the place. He sat strapped to a table for over an hour and a half while the technicians tried to find a vein that would work. They never did. When he got up from the place where he had been tied down, he staggered a bit. I asked him if he was okay. He said, “Yeah, it’s just that my leg fell asleep.” He had track marks up and down the inside of both arms where they had attempted to put in the needles. I had the willies for an hour after that. I decided that the American Red Cross needed to come up with a special award for his valor under fire, as it were. I recommend the “Knight’s Cross with Gold Oak Leaves, Swords, and Diamonds”. Erwin Rommel got that in 1943 and he didn’t have nearly as many holes in him as my friend did.



I arrived home shortly before ten after having put everything away with a few of the brethren. The techs were gracious enough to swab up the blood and iodine, but we still had to put way the tables and chairs.

I think that the next time I go down to the Infusion Center that I am going to ask for the “Star of the Grand Cross of the Iron Cross with Sarsaparilla Sprigs and Lorna Doone Clusters”. It’s about time!


Thursday, September 10, 2009

“Holy Chelating Thistle Milk, Batman!”

I have been suffering a general malaise for the last couple of days and I haven’t been able to figure out what was causing it. I thought maybe it was empathetic sympathy, or something psychosomatic, or a dietary variation of some kind, or maybe just a lightness of blood. I thought, “Well, maybe I should let my readers decide what my ailment is by relating the events of the past few days.” I realize that this invitation may be more than what the Comcast server can handle, but I will blaze ahead untrammeled. The service cannot be much slower than it already is.

A day or so ago, my youngest daughter posted a blog in which she related, with rather vivid detail, her adventures of the day. This included a description of a grievous laceration while washing a fragile piece of glassware and the subsequent medical attention that she received. I was not a little disturbed by this, inasmuch as I get just a little queasy when I nick myself with my razor. The poking, prodding and sewing lesson made me just a little faint. Had this not been followed by a realistic depiction of her own daughter’s projectile hurling episode, I might have survived the reading. I was completely worn out by the time I got to the end. Someone suggested that maybe I picked up what Eva had. I thought not, because I had managed to put myself into the Lotus position in my den when the clan arrived at the house for the wash-down of the car, the car seat, and little Eva. I find that when one of my grandchildren is in mortal agony, Buddhism is the only remedy.

About that same time (that is, a day or so ago and not during the Eva-agony) I decided to watch another episode of Star Trek TOS. I am near the end of the third season and am probably now looking at a shot at the final episodes of Battlestar Galactica once I am done. So I have been diligently watching Kirk and the boys do their thing. There is in the third season an episode called “The Way to Eden”. The plot involves a group of 23rd century hippies trying to find a lost planet where everything is beautiful, where the deer and the antelope are playing all day. As it turns out, the hippies anticipated the deer and the antelope by filling every scene with some sort of musical interlude. In the middle of all of this, Trillium walked through the room and said, “This is awful!”

I replied, “Of all of the episodes this is by far and away the worst. When the guitar player dies in the end, having eaten of the poisonous fruit of the planet Eden, there is a noticeable cheer from the production company.”

“Why are you watching it then?”

“I am a Trekkie. Trekkies take the good with the bad. But I would like a piece of that Eden-fruit right now.” I may have cursed myself in jest. I have not been well since.

I considered that perhaps other aspects of my diet may have had something to do with my lack of well-being. My breakfast that day had been composed of two pieces of rye bread toast and two glasses of 1% milk. I discounted that as the source of my problems inasmuch as I have that just about every morning. For lunch I had an entire head of lettuce, cut into four pieces, and slathered in blue cheese dressing. I decided that it was not the lettuce because I have that item frequently at mid-day. The dressing? What could possibly be wrong with a condiment laced with a boat load of mold? In the evening I had a 14 ounce rib-eye steak, perfectly grilled on our brand-new four burner barbeque, followed by freshly sliced peaches on angel-food cake covered in Cool Whip. Nothing evil there!

That leaves us with lightness of blood. Is it possible that my body is reacting to the fact that I now have less than 20% of the original amount of iron that filled my organ tissues a year ago? Could it be that I am going through withdrawal? Am I experiencing iron deficiency anemia? In the midst of my own personal agony last night, however, I discovered that “Doc Holliday” and I have been going at this hemochromatosis thing all wrong.

Last night I wended my way over to the church for a series of Boy Scout Boards of Review. The Krrrrakin was there and after I mentioned that I was feeling poorly, he said, “Oh! I have something for you from Calypso. I should have given this to you months ago, but it got lost among my tentacles.” He then handed me a rather moist piece of paper. It was an article from the Wright Newsletter, entitled “How you can benefit from the 3 things I never knew about milk thistle”. Wow! Am I in the mood to learn!

The third revelation in this little essay by Kerry Bone states that a group of Italian scientists (not to be confused with the German ones who determined how many skin cells are sloughed off by the human population of the earth every day) had discovered that “silybin”, a plant chemical found in milk thistle, could be used as a holistic method of removing iron from hemochromatosis patients. Dr. Bone reports that by ingesting 600 mg of silymarin every day (200 mg three times a day) a patient with hepatitis C can reduce his or her serum ferritin by 15%. Now, there are several things that troubled me about this procedure even before I went online to do a little research of my own.

First, how do you think the Italians would pronounce “silybin”? That’s right! “Sillybean”! Boy, that fact really breaths a lot of confidence into the theory! Second, how does one go about milking a thistle? The plants here in Utah are huge and they are physiologically opposed to anyone dinking around with them. Even with heavy leather gloves on I have found myself filled with spines as I have tried to pull the little hummers out of the ground. Thirdly, I don’t think I am really prepared to contract a bad case of hepatitis C just to download a little iron.

As it turns out, however, the seeds of the milk thistle (I think that I shall forevermore call these “sillybeans”) have long-established medicinal value, particularly in cases of liver damage. It has also been useful in treating those people whose eyesight is so poor that they cannot distinguish edible mushrooms from the Amanita or Death Cap mushrooms. “Sillybeans” can help with lowering cholesterol, with checking effects of type II diabetes, with reducing growth in prostate cancers, with reducing the deleterious effects of a hangover, and with ameliorating withdrawal symptoms of those addicted to opiates, particularly during the Acute Withdrawal Stage. Since the Miracle Whip Institute suggests that these are all viable applications for the “Sillybean”, it must be true.

With regard to the value of milk thistle in treating iron-overloading there is a virtual war raging in cyberspace. My buddy “wpat007” shovels down milk thistle every day. Some doctors support him, others think of him as dancing on the edge of eternity. Frankly, being somewhat familiar with the practices of Buddhism, I think that we should all take the “middle road”. Along with everything else that I have discovered about the plant, I have learned that many parts of the milk thistle are edible. Here are a couple of ancient recipes which I will probably try the next time a milk thistle pops its ugly head up in one of my planters:

“Around the 16th Century this plant became quite popular and almost all parts of it were eaten. The roots can be eaten raw or boiled and buttered or par-boiled and roasted. The young shoots in spring can be cut down to the root and boiled and buttered. The spiny bracts on the flower head were eaten in the past like globe artichoke, and the stems (after peeling of course) can be soaked overnight to remove bitterness and then stewed. The leaves can be trimmed of prickles and boiled and make a good spinach substitute, they can also be added raw to salads.”

Yummy! So like Hannah Montana and Miley Cyrus, you too can have the best of both worlds.

Tuesday, August 18, 2009

The Very Large 9

It is nice to have people watching out for me. For some, it is out of love, for others it is a matter of professional duty and pride, and there are those who do so because I am their cash cow. My sister Judie and Trillium are fervent in their labors to see to my iron disorder, that I make progress quickly toward “wunder-gesund” because they have invested so much time and effort in seeing to it that I am actually loveable. “Doc Holliday” has pinned his entire career on his treatment of my potentially fatal disease, bucking the winds of international cyperspace with his pedestrian approach to therapeutic phlebotomies. His has been the voice of reason in a hurricane of hysteria. The Infusion Center and the lab techs just smile broadly when I cross the threshold; I can hear the “ka-ching” as it reverberates throughout the building.

I also have others who have offered recommendations to improve my health. Some have been interesting, though impractical: “Eat Magnets – The 12,000 Gaussodyne Diet”. Others have peaked my curiosity: “The Star Trek Phlebotomy – Beam It Out of Me, Scotty!” And, my personal favorite: “If You Drink Enough of This Stuff, Your Iron Will Float Away Like the Axe Head of Elisha”. It is of this third sort of proposal that I would like to contribute a few words of experience and learning.

A couple of weeks ago, Trillium and I went a-visiting to Wendel and Lee’s house. The latter was all a-flutter about a new supplement that she and her husband had been taking. Lee was all aglow about this drink, 10 ounces a day of which would turn me into a new man. Being kind of an “old man”, I am certainly willing to try anything that would turn me into a “new man”. “Yes siree,” she effused. “Drink this stuff everyday it will take 50 years off of you”. That had some appeal, inasmuch as I assumed that I would also lose the 70 pounds that I have acquired since I was seventeen. “You, too, Trillium. This drink will cure any disease in the world.” I wasn’t sure what Lee was trying to say about my wife, but if the supplement were to take 50 years off her life, I would be sharing a cell with Warren Jeffs. Trillium and I bought two canisters of the product and began swilling it down. I was faithful about it. Some of the promised effects transpired…. Once.

The taste was ghastly. I was assured by Lee that it would have tasted a whole lot worse had it not been for the distilled cranberry juice. It was the second worst drink I have ever had. The first worst tasting drink I have ever had was Noni Juice. I think that it was designed to scare your body into good health. I know that my body always went into a panic attack just before I tried to horse some of it down. One of the bottles stayed in the refrigerator for almost two years before it finally walked off into the sunset. Anyway, back to the 2nd worst. The nastiness of the drink had to do with its main ingredient, L-arginine. In my own inimitable fashion, I have ferreted out a few things about it. The Miracle Whip Institute, located in St. Paul, Minnesota, gives some of the more salient points.

“L-arginine was first isolated in 1886. In 1932, scientists learned that L-arginine is needed to create urea, a waste product that is necessary for toxic ammonia to be removed from the body. In 1939, researchers discovered that L-arginine is also needed to make creatine. Creatine breaks down into creatinine at a constant rate, and it is cleared from the body by the kidneys.”

I really didn’t want to know about toxic ammonia in whatever year it was discovered. I have enough trouble just trying to get rid of the excess iron. I did discover, however, that ammonia is helpful in cleaning up old cast-iron pots and pans. So, my cast-iron stomach? Clean as a whistle! All of the overloaded iron in my pancreas, liver, heart, and brain? All bright and shiny! Wow! All that in just a week of sado-masochistic cranberry juice slurping.

“Arginine changes into nitric oxide, which causes blood vessel relaxation (vasodilation). Early evidence suggests that arginine may help treat medical conditions that improve with vasodilation, such as chest pain, clogged arteries (called atherosclerosis), coronary artery disease, erectile dysfunction, heart failure, intermittent claudication/peripheral vascular disease, and blood vessel swelling that causes headaches (vascular headaches).”

The first time I took a snort of L-aginine, my blood pressure dropped to 114 over 68. I was just a little light-headed. I got just a little giddy. I began to giggle and then to laugh outrageously. All was happiness until my body figured out that the L-arginine was releasing “nitric oxide” instead of “nitrous oxide”. Then I went into a kind of blue funk that lasted for a week. It’s not nice to fool Mother Nature.

“In general, most people do not need to take arginine supplements because the body usually produces enough.”

Well, there was a news flash worth $138.98. At another website I found a series of questions and answers about L-arginine. I give two of them here

“How does L-arginine work?
“L-arginine is converted in the body into a chemical called nitric oxide. Nitric oxide causes blood vessels to open wider for improved blood flow. L-arginine also stimulates the release of growth hormone, insulin, and other substances in the body.”

Okay! Low blood pressure combined with a possibility of growing even bigger than I already am. During the three weeks that I took the stuff, I put on 13 pounds. Parts of me were beginning to poke out of my shirt. If I had not quit drinking the juice I would have had to have bought a whole new wardrobe

“Are there safety concerns?
“L-arginine is safe for most people when taken appropriately by mouth. It can cause some side effects such as abdominal pain, bloating, diarrhea, gout, blood abnormalities, allergies, airway inflammation, worsening of asthma, and low blood pressure.”

Enough said! The cure is worse than the disease!

Now here is the news you have all been waiting for. I received the report on my last phlebotomy and ferritin check today. My ferritin count has dropped another 40 points to 135, just as I sort of predicted. The Alt/Med people are going to claim another victory I am certain. I can hear Lee shouting over the back fence, “It’s the L-arginine! It's floating that iron out of your body like Elisha’s axe head!”

So let it be written; so let it be done.

Monday, July 27, 2009

The Lyticane Placebo

Well, the economic downturn has finally hit central Utah!

This morning Trillium and I went out to go shopping. As we began our prance through Costco, we noticed that the price of gas had dropped eleven cents since the last time we bought any. Trillium said, "Well, maybe we ought to go over and top off the tank." Then she looked at the gas gauge. It was almost full. "It hardly seems to be worth the trouble." The fact that we had filled the tank six weeks ago says something about the amount of time that we have devoted to stimulating the U.S. economy. We took T-ma out to eat last week and went to Village Inn instead of Carrabas, not because we couldn't afford the latter, but we thought that it was really important to support a place that otherwise would have no customers at all. For my money, I simply bought myself about six hours of bad indigestion. The upside was that my body completely rejected all of the available iron in the onion rings, the deep fried cod, and the jumbo scrimp slathered in cocktail sauce. As my duodenum said later, "I am not going to stand for this any more! From now on, I am only going to accept the Pollo Rosa Maria." Works for me.

As part of this morning's adventures we drove up to the DFCU to see about getting our annual box of free checks. Since we have been depositors and investors in the place for more than 30 years, the credit union has a special place in their hearts for us. We are "Loyal" customers and therefore, DFCU tries to benefit us in a variety of ways. We have been in Utah for nine years now and at some point early on the credit union sent us a notice saying that they were going to shower us with gifts as an act of appreciation. They would pay all of our bills for free. They would give us checks for free. They would do notary work for us for free. They would give us a considerably higher rate of interest on our CDs than the normal dweebs received. We could eat all of the lobby candy that we wanted, which usually consisted of rootbeer barrels. Just a whole bowl full of things for us if we simply dropped in. The bill pay went away after about six months. I asked what had happened. They said that the whole thing fouled up their computer system. A couple of other benefits have gone by the boards, including, as it turns out, the free box of checks every year. When I asked about it this morning, the teller said, "I'm new here. I don't think we do that." I said, "You have been doing it for at least five years. What's happened?" The teller contacted her supervisor.

"Oh, we don't do that any more. The downturn in the economy, you know."

"Hey! I didn't become involved in risky business dealings all over the country. I didn't invest in sub-prime mortgages. I didn't spend more than what I had coming in. I stuffed all of my disposable cash into this place, figuring that I would thereby have my free box of checks every year because I was LOYAL! Now I suppose I will have to leave a ten-dollar bill in the basket just to have one of these rootbeer barrels!"

"No, Dr. Beeblebrox, those are only two dollars. The economy isn't that bad."

This afternoon I went over to the Infusion Center to have my bi-monthly phlebotomy. The girls all ranted and raved at my appearance, commenting appreciatively about my blog, how wonderfully entertaining it was, in spite of the fact that I made them out to be a pack of ghouls from time to time. One of the nurses said to the other, "You know, Majel, Zaphod thinks you are his hero."

"Why does he think that!" I love being talked about in the third person when I am in the same room.

"Because you were the first nurse to take his blood and it didn't hurt as much as he thought it would." I wondered when that happened. I thought it was the Girl in Glacier Ice Blue that had managed to cure me of my phobia, or at least part of it, when she told me that the Lyticane was what really hurt and not the needle. I decided that it was not worth my life to tell "Chester" that she had confused my nurses.

In any event, "Nurse Chappell" arranged all of the gear around me in the cubicle. I said that I was grateful that I had learned that it was not the needle but the local anesthesia that hurt me at the first. It was then that the horror began.

"Oh, Zaphod, the needle always hurts, no matter how small. It just does... It just does..." Then she began to morph into Peter Lorrie, in texture and temperament.... "Yessss... I really don't want to hurt you, but....... I just,... I just,... I just can't heeelllppp myself."

And, lo and behold, that needle did hurt, it hurt a lot! I almost jumped up out of the chair. "Wasn't that nice?" the nurse said.

"No, no, it wasn't!"

"Good!" Then she pulled out a needle the size of a broomstick and tried to jam it into my elbow. "There," she said, "Does that hurt? Does that hurt? How about over here?"

When I came to, the nurses were pouring me a glass of Barq's rootbeer, while a third one of them was stepping on my package of Lorna Doones. "Sorry about the cookies," she said sheepishly as she poured the dust into my hand.

"What is going on here?" I said weakly.

"Oh this is just part of our inservice training for the new healthcare program that the Senate and the House are getting ready to vote on. We just wanted you to know what your service is going to be like if it goes through."

"Really? Even Medicare patients?"

"Especially Medicare patients. I hope that you didn't mind too much that we used rootbeer instead of Lyticane to deaden the place where we drew your blood. We literally wanted you to get the point."

I decided afterward that I would get my haircut, so I went up to the Dollar Cuts next to Macy's on State Street and had a lady work me over. She was an old time barber, one who had been doing hair for 35 years, one that put the little tissue around my neck first before cinching down the apron. After she did my hair, she worked my eyebrows over and the tuffs of fine white hairs that collect on my ears from time to time. I think she actually put Brylcream on my hair. I felt like a new man. It was an $11.00 haircut. She managed to get so much iron off my head that I gave her a three dollar tip. As I was paying my bill she said, "The girls from the Infusion Center called to say that they were sorry and that I was to give you a really good hair cut. They said that if you tipped really well that they would take it easy on you next time, even though it is their current policy to really stick it to everyone who comes in. Actually, they are really worried about what you are going to write about them in your blog."

As I thought about it, I laughed right out loud. I laughed all the way out to the Mustang, all the way down State Street, all the way to the house, and I am laughing as I am putting the final touches on this little entry.